Over two weeks ago, I saw my neurologist and she is doing a complete workup from blood work, MRI of brain, cervical and thoracic spine and a lumbar puncture (LP). I must say I was shocked that finally I found a neurologist who was going to step up to the plate.
But due to her doing a LP I thought maybe I should stop taking my vitamins so if something such as the EBV or MS (Multiple Sclerosis) was in the cerebral spinal fluid (CSF) it will show more easily. Really with regards to MS, once you have the O-bands from what I understand is you have it for life (correct me if I’m wrong). But I thought as far as the EBV she was going to check the CSF for EBV levels.
The reason for this is I told her a year ago many of my CSF showed elevations in protein, red blood cells, white blood count and I was low in glucose but I am hypoglycemic which could account for that. I asked her to test for any and everything should could think of that could cause this along with checking for MS and levels of EBV.
So with this in mind I thought I’d stop my vitamins so to get a more accurate reading for the EBV levels. This was the worst decision I could have made. I have been bedridden for over a week due to the various symptoms. I just don’t want to move I hurt so bad and the fatigue is excruciating. After being bedridden a week I decided to restart the vitamins and now I am still trying to recoup. At this point I’d prefer staying in bed all day still … which I have been doing with the exception of this post.
So word to the wise: You may think the vitamins are not doing nothing but they are and if you stop them you will see it is obviously doing something and keeping the CEBV at bay to an extent. Even when taking them I am still fatigued and in pain and have various symptoms but at least I can do small things around the house versus being bedridden. So I have learned my lesson and never again.
For your reference here is the vitamins I am currently taking:
Please be aware if I list 2 links under a vitamin it is for alternative options and convenience for cheaper pricing, do not take both at same time. Do not take all the ones listed simultaneously! Just offering options that I may use in case multivitamins or vitamins are discontinued or sold out.
Most of these vitamins are for assisting the immune system, or antioxidants or helping other areas of the body which EBV could be effecting.
- Methyl-B12: **1000mcg or 5000mcg 1-2x a day. Helps a little bit of everything. Highly recommended if you are experiencing leg and/or feet pains or have diabetes. This helps to maintain and/or lower glucose to appropriate level. Also, helps with Gout Arthritis by expelling the uric acid out of the body and liver.. I know. Also a must if you have MTHFR.
Jarrow Formulas Methylcobalamin **1000mcg
- ** SmartyPants a multivitamin with high quality forms of each vitamin along with activated forms of B vitamins. I take the recommended dosage daily. I take the women’s formula. I did list the adult formula as well … my son takes that one. The good thing about these vitamins is that they also have fish oil, coq10, vit k and others that are nice. Will thin blood due to fish oil and coq10 in women’s vitamins.
SmartyPants Women’s Complete Gummy Vitamins
SmartyPants Adult Complete Gummy Vitamins
- ** D3: 1x a day
Doctor’s Best Vitamin D3 5000iu
- ** Vitamin C: 1x a day
NOW Vitamin C-1000 Sustained Release
- ** L-Lysine: 1x a day
- ** Magnesium (chelated form): 1 a day
Doctor’s Best High Absorption Magnesium
- ** Zinc: 1/2 pill a day
- ** Turmeric / Curcumin: 1x a day. Helps with inflammation. Does thin blood. Take with caution. If bleeding or nose bleeds starts quit immediately. Some of the suggested doses on the bottles are high so take minimal amount due to being on blood thinner.
Turmeric Curcumin Complex with Black Pepper
Life Extension Super Bio-curcumin
- **Selenium 1x a day
- ** Melatonin for sleep: 1-2x a night
- ** Epsom salt & baking soda baths: 2-3 soaks a week. I have found taking epsom salt & baking soda baths to be more effective. Epsom salt baths help in expelling toxins / waste out of the body and lymph nodes through the wrists and the bottom of the feet.
Baking soda – big bag 13.5 pounds
Baking soda – big bag 12 pounds from walmart
Epsom salt 8 pounds. walmart has a great price when available
Epsoak Epsom Salt 19.7 pounds
- ** CBD Oil: This helps with a lot of various pains, seizures and helps me sleep better too. You can vape it or get the drops. The following is the most popular sources for buying. Also, keep in mind this is legal in all 50 states. It is cbd oil from hemp.
CW Hemp – everyday or everyday plus drops. Sign up for newsletter for specials and coupon codes. BTW! Visit the site and register from this link, and we’ll both get rewards points towards future purchases! Create an account now! Awesome!
Cloud9Hemp – for vaping and has various flavors. They have a coupon code for new customers on the home page.
- ** Metamucil and Generic Forms: for irritable bowel syndrome and overall health. 1x every other day. I rotate it out with the probiotics. One day metamucil the next the probiotics then repeat. Helps w/ digestion which is important with EBV.
Equate – Fiber Therapy – Smooth Texture
Equate – Fiber Therapy: Walmart
- ** Probiotics: 1x every other day. Rotate it out with metamucil.
Digestive Enzymes Plus Prebiotics & Probiotic
For other helpful items for making your life easier visit my Products I Use page. At the bottom of the page I list many items I use to help me be more comfortable and have a better quality of life. Big hugs!
Good luck and Stay Strong!